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[30 Jan 2011|10:57am]

lucy_indisguise
I'm posting this in all the places I can - please consider joining Dr Susan Love and the army of women

www.armyofwomen.org

Special Message from Fran Visco
On September 20, 2010, we called for a global strategy to end breast cancer by January 1, 2020. We launched Breast Cancer Deadline 2020®. When we announced this bold move, Susan Love said, “We can be the generation that stops breast cancer—and we must be the generation that stops breast cancer.” It’s time. With the power, commitment, passion, intelligence and courage of our advocates at NBCC, we will make this happen.

By calling for an end to breast cancer, we’re calling for an end of business as usual. Breast Cancer Deadline 2020® changes the conversation from raising awareness about the disease to one that asks, “What must we do differently to end breast cancer by January 1, 2020? How do we succeed?” It upends "business as usual" and brings back the sense of urgency needed to save lives.
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Please welcome tyler to LJ! [08 Jun 2009|09:53pm]

tylertucker
Hey everyone Tyler's is new to LJ please show your support! Feel free to visit his website at tylertucker.com

Born: October 9, 2000 in Greenville, South Carolina
Treatment locations: MUSC and Baltimore, Maryland.
Total Surgeries: 37
Tyler Updates, pictures, and chatting at TYLERTUCKER.COM

Tyler's Story:
The beginning: When the family found out the horrible news…


At Christmas, just after Tyler turned two, he fell on a small toy car and scratched his jaw. The jaw swelled and by New Years Day we had to take him to the hospital. The hospital staff said that Tyler needed surgery to remove a cyst. Dr. Wilson did the surgery and came out with tears in his eyes. He said that the problem was not a cyst, but cancer and that he sent a portion of the extracted material to the lab to have it analyzed. The results came back as Rhabdomyosarcoma of the Mandible. When the results arrived, January 30, we were called to his office and he cried with us. Tyler was admitted to MUSC Hospital in Charleston, SC immediately. We felt this couldn’t be happening to our baby; not Tyler. The staff at MUSC has been wonderful and have become like family. We learned to love everyone there. Tyler has stolen the heart of everyone on Floor 7b.

Tyler was having trouble breathing because of his jaw, so the Doctor’s decided a tracheotomy was needed. At the same time, Tyler’s jaw fell so the medical staff had to wire the jaw shut. After that, he couldn’t keep feeding tubes in, forcing them to replace the tube six times.

After radiation and chemo, Tyler underwent surgery again where they took fibia bone from Tyler’s leg and transplanted it into the jaw to replace tissue that had been removed because of the cancer. Shortly thereafter, it was diagnosed that the cancer had moved to both of Tyler’s lungs. Doctors removed the upper portion of Tyler’s right lung and the chemo seemed to clear up the left lung. As a result of this surgery a chest tube was inserted. Tyler was so strong that he went walking down the hall with that chest tube still in! Dr. York said she wants a picture of Tyler to go over her desk. She said that he was the strongest kid that she had ever seen and that he was her miracle baby.

Tyler’s illness has been very hard on our family. Ashley, Tyler’s mom, is only in her twenties and is unable to hold down a job and still care for Tyler. He requires long trips to doctor’s appointments and special care. Tyler also has two young brothers that Ashley must care for. But God has been with our family and we believe he will carry us the rest of the way. Tyler had four staff infections while he was in the hospital, which encompassed most of 2003. We took a camper and stayed in it at Lake Air Campground so we could be near Tyler and Ashley through their ordeal.

Tyler has great difficulty talking because moving his jaw is very painful. He can barely eat and weighs on 57 pounds at eight years old. For a long time, Tyler had a feeding tube because he could not eat. After two unsuccessful jaw reconstruction surgeries, Tyler is now facing a titanium jaw replacement. This will be his 37th surgery over 6 years and there will be more as he grows.

Tyler loves playing with his papa George and he loves holding on to Mama and playing with her hair, but when he wants his way, he runs to Nanny, who cannot help but give him what he wants. Tyler is very close to his Nanny Darlene.

Tyler has been through things that most adults couldn’t survive..

Recently..

Tyler is now in remission. This doesn’t mean he is cured or better in anyway. How we wish the cancer the end of his ordeal, but there is so much more Tyler has to go through..

Tyler will need to be brought three hours each way to MUSC Hospital for follow up appoints all of his life. According to his doctors, he will never be 100% better. He is missing half of a lung and has had both of his legs broken to get bone for his jaw. It is devastating that he must endure more pain to take the next step and install the titanium jaw.

Tyler tends to get sick often because his body is so weak from the chemotherapy. It breaks our hearts that he cannot do the things that normal kids take for granted. Right now, Tyler is home-bound, so he is not even able to enjoy school. Without many kids in his neighborhood, Tyler gets lonely for other children.

Sadly, Tyler may never be able to eat properly. We pray that the surgery on his jaw will give him some form of normalcy. He will never have the kind of childhood many of us enjoyed and he may never be able to have children of his own some day because of the chemotherapy.

Tyler’s cancer is uncommon. We only came across five or six other children with the same cancer in our web research. Sadly, many of those children did not make it. Others had the cancer return. Tyler has beaten the odds at every turn. The doctors never believed he would make it. We feel so lucky and blessed to have Tyler still with us and we believe he will make it!!!!!!

The chance of Tyler’s cancer coming back is very high, but we believe he will beat it. It is the care and support of people from all over the world that gives us faith. We have hope, and we know Tyler is a warrior!
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[01 Jan 2008|10:49am]

lucy_indisguise
Happy new year everyone
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[25 Dec 2006|01:22pm]

lucy_indisguise
[ mood | excited ]

Happy Christmas everyone

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[13 Oct 2006|11:20am]

tsmmusicman
Hey everyone

Hopefully this won’t come across as advertising, but I was invited to beta test this site you all might want to check out. It’s called www.lovehealz.com and is basically a mix between Myspace and eHarmony specifically for people with cancer and other illnesses. They said they are going to be donating millions of dollars to charities like the American Cancer Society and the Leukemia & Lymphoma Society! That’s really why I wanted to post here.

It seems like they’re supporting a really great cause and could really use some additional opinions to make it work.


Here’s the beta code to sign up: RFBETA06
Hope to see you there!

-Jason
1 comment|post comment

[28 Sep 2006|08:53am]

ambr0sia
Cancer took the love of my life away from me a little over a month ago.

My boyfriend Robin was raising money for LAF to fight cancer beginning in 2004 when we lost 2 friends to it. Then, in August 2005 he, himself, was diagnosed with Cancer. Stage 4 Stomach Cancer (he had actually been showing the signs of it about 6 months previous, but the Doc at that time said it was "just an ulcer and sometimes you just get ulcers"). He fought hard with Chemo and Radiation after having his stomach removed. In March they told him he was in remission, as there were no signs of any cancer left on his CT scans. In July, we bought a house together and on the same day as the closing we were told his cancer was back. Even though the news was not good, we were determined to "beat" it again. Unfortunately, we weren't so lucky. He went down hill pretty fast. We were in and out of the Cancer Center 3 times in 2 weeks. He kept filling up with fluid in his abdomen (the fluid had cancer cells in it) and it became impossible to eat. He did one round of a new chemo regimen which made him more miserable than he was. The doctor told him the chemo would only "prolong his life or quality of life" for maybe a year and that it would not be a cure. There was only a 50% chance it would even do that and we wouldn't know for 4-6 weeks if it was working. After thinking long and hard about it, Robin decided to stop the chemo. He was used to cycling 200 miles a week, kayaking, being active and believed that laying in a bed all the time feeling miserable would not be living.

We went home a couple days later and got set up with Hospice in our new home. They were really wonderful and made sure he was comfortable. Robin passed away just 2 weeks after coming home with hospice. He died peacefully in my arms while I was napping with him in his hospice bed.

Sweet Dreams, My Love...


His Memorial was beautiful, over 300 people showed up. Lance Armstrong sent a huge flower arrangement filled with yellow roses & sunflowers. He was loved, even by people that had never really met him.

I really miss him. I'm sure some of you can relate as far as losing a spouse goes... I can't describe the kind of empty and loneliness I feel after being with him for 6 years. :(

I have been meaning to post this since it happened, but have had a hard time bringing myself to do it.



*crossposted to a couple other cancer support communities....
4 comments|post comment

20-somethings with A.L.L.? (x-posted) [23 Sep 2006|02:58am]

secretknots
Hi folks --

I'm new to the community.

I need some help. My amazing best friend from high school is 24, and was recently diagnosed with Acute Lymphocytic Leukemia. He would like to meet/get in touch with some other twenty-somethings with A.L.L., so I thought I would try to help him reach out and see if anyone would like to strike up an email correspondence.

His MySpace profile can be viewed here: http://www.myspace.com/99723564


Also, if anyone can recommend any other online resources or support communities for young folks with A.L.L., that would be great.


Thanks & warm wishes,
K.
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[15 Jun 2006|05:10pm]

jjjohansen
I was recently in Washington DC, and visited the Smithsonian's American History Museum.
The highlight of the trip... seeing this:
lance's bikeCollapse )
Also, they had the LiveStrong braclet he wore during the race, but I wasn't able to get a good enough picture of it.
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50 icons [06 Jun 2006|05:23pm]

xheartrockx
Hey everyone!
I've been skipping by this community every now and then and saw that long time no post.
So here I go. I just made 50 icons for sports_abc50. Hope you like them

+ if you take any, please comment
+ please credit xheartrockx
+ let me know what you think

teaser:
Photobucket - Video and Image Hosting Photobucket - Video and Image Hosting Photobucket - Video and Image Hosting

find the rest at my icon journal

+ crossposted with armstrong_icons, livexstrong & lovebite_icons
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[02 May 2006|11:22pm]
perfect_lie06
* *

Good News!

today i was on the front page of the sports section in the cincinnati enquirer. i'm pretty excited, check out the link:

http://news.enquirer.com/apps/pbcs.dll/article?AID=/20060502/SPT/605020391/1062

xposted
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On St. Patrick's Day [17 Mar 2006|04:59pm]

morzsa
[ mood | drained ]

Here people do not celebrate good old St. Pat, so I was taken by surprise when I woke up to a very green room. The early shift changed the curtains and even my pyjama bottoms (good thing about having SCI is that I don't wake up when that happens) to bright green. There was a green vase and green hand towels... I was like wow, it must be St. Patrick's day today!

The best part was this afternoon, though. My Doctrines and Believes (it is kind of like Sunday school and Bible Study, except we study other books and belief systems as well) came and brought balloons and green cookies to everyone on the floor. They are still around, helping out with dishes, bedding change and just hanging out with patients. Good language practice... both ways! The youth leader told me that the fund raiser we started last month is going very well. Both of the car washes and the free translation service are bringing in enough money to meet our goal of HUF 125,000 (About US$500) by the end of the month. The youth are trying to decide whether to donate the money straight to the Children's Oncology Clinic or to rather buy something from that money and donate that.

Another good thing today was that I heard back from the leaders of a camp for special needs kids. This will be my third time being staff, and I now have the dates and place. I just found out that after all this talk about being with a wheelchair group, I will actually be team leader in the group for youth (16-20) with cancer. As much as I would have loved working with the wheelchair users, I will love it. They are closer to me in age as well, and some of my D&B kids will be buddies at the camp. There is a buddy system and in the past it has worked great. I have a meeting on 24 April to start planning activities. There are quite a few ideas already floating around, but if you have any ideas about what to include in the activities, please comment!


x-posted to my LJ

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Help Donate to the Livestrong Foundation [09 Mar 2006|12:23pm]

lexiphoto
Has anyone seen this? Hewlettt-Packard and AMD are trying to raise $25,000 for the Lance Armstrong Foundation. All you have to do is submit a photo (something that helps you live strong), and $1 goes to the LAF. It's called 25,000 Strong, here's the website: http://livestrongpc.com/index.php?hmlink=2 I think you can submit as many photos as you like.
2 comments|post comment

an update on my cousin [05 Mar 2006|11:32am]

flute_player
I recently recieved an uplifting e-mail from Tyler's sister-in-law.

1. Tyler is in pretty good spirits about his situation. He's determined to get well soon so that he can return to school next semester if it's possible.
2. The type of Leukemia he has--I don't remember what it is called but I remember the initials ALL--is quite treatable.

That's pretty uplifting. I'm quite sad because I can't go visit him over my spring break like I wanted to, but I fully intend on mailing him a card of encouragement or something.
1 comment|post comment

Support [05 Mar 2006|10:29am]

morzsa
[ mood | restless ]

This is just a question... or two.

What is it that helps you cope? What is the source of your support? (Other than family.)

5 comments|post comment

Mod post [01 Mar 2006|01:00pm]

inflictedangel
Hello everyone! I hope everyone is doing well and yourself and your families are hanging in there and getting ready for spring!

I want to direct everyone's attention to some of our new "regulations" if you will. All information regarding upcoming cancer events and fundraisers, sponsorship opportunities and advertisements will now only be acceptable in the pinned post at the top. If you have something to post please feel free to do so in that entry. Please do NOT post in seperate entries. The first time the post will be deleted and the second time you will be banned. (and I absolutely do not want to ban ANYONE).

Also, there is now a link to direct new members (or anyone else for that matter) looking for liveSTRONG bracelets to Lance Armstrong's website, since we all know when this community was started we were inundated with requests asking for how to obtain them.

This community has been rather slow lately, in huge part because of my lack of time and commitment, but I plan on doing my best to keeping this place afloat and hopefully we can all help others with the support they need =)
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Fundraisers, sponsors, advertisements and more! [01 Mar 2025|12:36pm]

inflictedangel
This is our official fundraisers, sponsors, and advertisements section here at livexstrong. If you are having a fundraiser and would like to invite members of our community, this is the place. If you need sponsors for any kind of cancer related activity, this is the place also! And lastly if you have an advertisement for another community that may be of service to those in this community, this is the place also.

Please do not make individual posts about any of these things. Spamming will not be tolerated and those who do so will be banned.

Thank you to morzsa for the idea!
2 comments|post comment

an introductory post [28 Feb 2006|01:35pm]

flute_player
Hi there. The name is Liz...

I'm glad I found this community. My cousin, who is my age (19), was just recently diagnosed with Leukemia. The news hit my family hard...

Like I said, he's my age. He just recently graduated from high school, and he was a college freshman at some private college in Mississippi. He and I were buddies when we were younger, and news like this kinda threw me off.

I really want to be there to support my family, but they are over 700 miles away. How does one provide support for a loved one several states away?
1 comment|post comment

Spring is nigh, so here is a rant [28 Feb 2006|09:24am]

morzsa
And with spring cometh the season for fundraising walks, runs, cookie sales and what not. Which is quite all right. What bothers me is that virtually all the support communities are being flooded with people who ask the members to sponsor them. Because of this I have left all but one of the cancer support communities I have been part of (this one being the one I haven't left).

I would think that most people who are here are actually here because either they or a loved one is a survivour--living with or recovered from cancer. I believe these people are quite aware of the ways how they can donate for whatever event/organozation they'd like to sponsor. I am also fairly sure that most people are already contributing what they can. Others, at the moment, might not have anything to spare because of various reasons, one of them being that having cancer makes life a lot more expensive than it was before.

It might be only me, but I am awfully annoyed by people just joining the community to seek donations. There are other ways to do that, and if one must absolutely beg strangers for donations, they can always walk around their neighbourhoods and knock on doors. I think it is rather tasteless to do it in support communities that people join for the sole purpose of finding donors. Maybe they'd like to contact the maintainers and include a link in the community userinfo, but I just can't take every other entry on my friends page at this season being people asking for sponsorship.

Oh well. I am just weird.

x-posted to my lj
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Hey! [27 Feb 2006|10:20pm]

lady_archangel
I'm kinda new to this community.

My dad was diagnosed with thyroid cancer a few years back. Thank God they caught it in time, and he's been recovering quite nicely since. I thank God that everything worked out well, but I know that there are a lot of people who aren't quite so fortunate.

My school is taking part in the AMERICAN CANCER SOCIETY'S "Relay for Life" and I'm walking with a team of my friends. If anyone can (I know a lot of people aren't too big about sponsoring people they've met on the internet) donate any money, it would be awesome and appreciated by me and my whole team. We don't care about the size of the donation--every little bit helps.


http://www.acsevents.org/faf/donorReg/donorPledge.asp?ievent=128917&supId=120426794

Thanks for whatever help you can offer.
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Protection Wings Charity Site [01 Feb 2006|10:10am]

wendykathleen
I wanted to share my new website Protection Wings http://www.protectionwings.com
with everyone. The mission of the site is to inspire, enlighten and increase awareness
of various afflictions which people suffer from, while raising money for the causes. Each painting of a protector is inspired, by real life individuals who have suffered from various afflictions including breast cancer, diabetes, heart disease, Leukemia, Melanoma. I hope you will be blessed from this new site. Please also share it with others so that we can celebrate life, beauty and joy.
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